Hello, Seth.

I am so very sorry to hear this bad news. It was a big, happy "Wow!" after your first PET, and now this. This disease is incredible at times and just leaves you saying "how can this happen in such a short period of time?".

I am so happy and have good thoughts about this drug trial. Here's to hoping that it leads to a cure for you and many more to come!

I wish you all the luck the world has to offer and the very best medical care.

Blessings to you and your family. I hope to hear good news from you very soon.

Love in OCF,
Kerri

37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!