Hi Seth--I may be double emailing you--still getting used to this site. Apologize if I am. It seems your case is so much like my husband's (right down to the silver lining of never having had the nerve-- but always wanting to-- shave his head). I am glad to hear your treatments are progressing. Is the radiation the same type that was used on your initial go-around? Or is it the more directed (cyberknife?) type? We are new to the discovery of the metastasis to the lung's hilar lymph node. And still reeling. Met is still small, so docs advise waiting for it to progress to "measurable" disease before treating it. Getting second opinions shortly. Thank you for sharing your experience on this site. It's great to know you're riding your bike again (in London traffic??!!). Finally, thanks to your forebears for the phrase Keep Calm and Carry On. I have it posted in several prominent places in my life.

Best,
Mary


Mary
Caregiver to husband, 60
Dx Sept '12 SCC BOT T2N2aMo, Stage IV, HPV+
Oct '12 Sub.Gland transfer
Nov-Dec '12 IMRT x 33 + cisplatin x7
March '13 PET/CT: 2 spots on lungs; (BOT & neck lymphs NED)
April '13 Biopsy: 1 = malignant right hilar lymph (met from HNSCC)p16
9/13: 33 rounds IMRT to lungs; carboplatinx7
CT w/contrast 12/30/13: 2 spots left hilar lymph. biopsy confirms SCC
30 rounds IMRT to left lung; treatment ended 5/29/14
Sept 2014--CT clear; December 2014 CT clear