Hello, Seth.

I am just catching this thread and all sounds very well and hopeful for a cure!

After reading your story, it makes me wonder if my second cancer was indeed metastatic and not a new primary. I, too, do not fit into any statistical/prognostic category, so the same goes for me with careful watching.

I have been selected to participate in a study for rare cancers at Mass General. I'm definitely doing it! Anything to help find new treatments and move toward a cure of this disease!

Best wishes for your continued good results. I hope that your scan shows that the treatment is working and that the follow up radiation will take care of the rest. Let's be done with it once and for all!

Be well,
Kerri

37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!