Hi Rachael,
My heart goes to you. I'm so sorry for what you, your mother, and family are going through. It sounds like your mom has a long road ahead of her. You have found a wonderful site with the best people. As a patient, all I can say, is just be there for your mom. She will need the support of some strong people.
Good luck to you and feel free to ask as many questions as you want. There are plenty of people who can answer them.
xoxo