Hey everyone, I haven't been able to get on in a couple days, but here's the latest. Mom saw her Rad doctor yesterday, I thought it was supposed to be her chemo doc, but anyway, he told her, after chemo, they will start the radiation, but before they do, they will have to take all her teeth out and she will also be getting a PEG tube. She will be going everyday (Monday-Friday) for 6 weeks. Her chemo, I'm still not too sure yet exactly what she will be getting, but I do know that they told her she will get a port to administer it, She sees that doc on Monday, and I think will be starting right in next week. Nancy, I wish I could go to my moms appointments with her, but unfortunately she prefers it be only her and my dad, which I have to respect, then I only get bits and pieces of what the doctor has to say, even between the 2 of them, I know I am definitely not getting everything. I also know that they told her after chemo, then teeth and tube, then rads, then she will have reconstructive jaw surgery by using bone from her leg.... all of course depending on how everything goes. I will be calling her doctor though through out her treatment plan and get it right from him on how things are going, and progressing, and if they are progresing, thankfully she at least put me as a proxy so I can do that.

Nancy, I'm so sorry to hear that your mom has lost weight, the doctor told my mom to eat everything she can now to bulk herself up, but she can't eat much of anything either because her jaw is in too much pain to bite down, so I don't know how she will do, she's about 120 now before treatments, so I'm afraid to see where that will take her. I wish you and your mom the best, and hope she doesn't lose much more.. maybe the doctor can do something to help her like David suggested. Best wishes!


Rachael- daughter 53 year old mom at stage IV oral in jaw bone and has mestasized though lymph nodes, shoulders and spine..... more details to come.
mom now 55 and has metastized to chest and liver, has stopped all treatments and meds 7/12/11

**let good prevail over evil**