So sorry that you have yet another battle to face.
You CAN get a PEG that works and and doesn't clog. Bill had such good luck with his...never had a clog or displacement issue and got over the soreness within about 4 days. I am grateful for a wonderful surgeon..I think that made all the difference with his PEG and port.
We cleaned around it every day with gauze and kept it in place with a soft ace bandage and never had infection and soreness.
Good luck to you and ask around for a good general surgeon to place this for you...makes a difference.
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
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