Michelle,

I am new in the "game" so probably not as worn down as one would be after a year or so. So my advice is coming without a lot of experience.

If you are trying to work and be a caregiver, you are in a high stress situation and I don't blame you for needing a break from it. Sometimes by 9pm, I am ready to scream...I just need a little break from all the responsibility of treatments, feedings, meds, and bedside manners. That being said, I think that the diagnosis and treatment of this disease more than requires teamwork...I can't imagine going it alone. Your husband needs you and you need your husband to understand how much this takes from you. I don't think that can be accomplished living apart. Much is lost when talking by phone...face to face is important. A third party to counsel you might help as well...Jesse may listen to a unbiased voice.

I agree also about not tip toeing all the time. I have yelled, then felt guilty, then told self that he would feel strange if I didn't do my normal "b.t.hing."

Good luck in all of this...don't want to sound righteous...its too early to be Pollyanna about my relationship with hubby...right now its good and he is appreciative...the future will tell how strong our 30 year marriage really is!

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill