When Dennis came home last weekend, an RN was supposed to be here to attach his wound vac.

This guy pulled out the instruction booklet and proceeded to "wing" it, like someone chasing wire on a new stereo system. He didn't have a clue.

Thank God, they took out DJ's pic line before discharge, because he was supposed to teach me the care for that, but told my sister-in-law ( while waiting for us to get home.....YES, we had a flat tire trying to get here from Baltimore) that he had no idea how to deal with a pic. My brother-in-law is in remission for leukemia, so, thankfully, if it had been the case, she could teach me.

This dork finally did (after 5 hours of reading the manual) a dressing that held all of 12 hours. Dennis came downstairs the next morning and the tube fell off. I called at 10 the next morning and another RN finally showed up at 9 that night (with her BOYFRIEND!!!!.......dressed to go to the bar) only to tell us that she didn't know how to do a wound vac either! Dennis got pissed..........took over and put his own dressing in place.

Fast forward 8 hours......he woke up soaked in his J-tube feeding. This was the second tube installed, since the first balloon failed in the hospital. He spent the next 12 hours in the ER.

They released him, and I had to take him back to Johns Hopkins the next morning. Another week there, and then to the nursing home.

Now, with the insurance being what it is, they don't give a crap that his diet has changed. He's lost 30-plus pounds in the last 6 weeks and a higher nutrient Jevity feeding was ordered, but they want me to "simply" double up on the Jevity that I've already been given. OK............now he is hooked up 8 hours a day just trying to get the minimum of nutrients that he needs.

I will be putting on my BITCH BRITCHES in the morning, and lord help whoever answers the phone. I don't give a crap anymore.

I'm here fighting tooth and nail for my husband. Where are all the other people who don't have caregivers? Not many are with us, I'm afraid.

Love,
Mandi