Thank you all.......you don't know how much it means to be able to share all this with you and be understood.

I know everyone on the outside means well, but if you have never faced this situation, you don't have a clue how frustrating the whole thing is.

I finally had an insurance RN call me this morning.......no, they don't cover at home nursing for the caregiver to do what else might be needed. They are working on giving me a list of non-profit facilities that offer respite care.

Sigh........Dennis is not going to go for that, I'm afraid. He already has so many issues that he would rather be left alone than depend on a volunteer.

Still waiting for the Jevity to be delivered....I swear, if I have to call them again, it will be ugly.

Also called to make a follow-up appointment with the neurologist........first available is JANUARY 25. Transferred to his answering service and nobody answered. Called for a follow-up with his ENT surgeon........got voicemail but no call back.

DAMN!!!!

Love,
BB


Stage III tonsil, Dx 8/14/2002,chemo and rad...reoccurance 8/3/07,Base of Tongue,vocal cords,stage IVA,total larynectomy and glossectomy 9/4/07 with pec flap...reoccurance Nov. '08 and Feb. '09 (positive margins remained after each operation) Second pec flap May 7, 2009. Still positive margins.