Dear mandi ,it really is overwhelming and very scary isnt it.I cannot give you any advice because your healthcare system is so very different in America and your situation just doesn't arise here,as home nurses and particularly cancer specialist nurses are all provided on our national health service.They were absolutely invaluable to robin and i in the few days between his terminal diagnosis and his admission to the hospice,even coming out at 2am one morning when Rob had a morphine toxicity episode.
Take care Mandi i will be thinking of you

love liz