OP  Supporting Member (50+ posts)
Joined: May 2006 Posts: 57 | I'm here......that's all I can say at this point. The whole experience has been a nightmare...
Good news, Dennis came home today. Bad news, Dennis came home today.
It is all so overwhelming. I'm doing his feedings via pump, packing the wounds, taking care of the trach, suctioning, and the wound care on his open abdomen incision. Couple that with 13 meds that have to be coordinated three times a day. (All but two have to be crushed)
And try to do all the other things..........two kids trying to stay normal, running in two different directions, bills, meals......
I was told tonight by the visiting nurse that a patient is entitled to a home nurse a certain number of hours per day, if they have a trach and a feeding tube. Has anyone else ever heard of this so called "right"?
Love,
Mandi
Stage III tonsil, Dx 8/14/2002,chemo and rad...reoccurance 8/3/07,Base of Tongue,vocal cords,stage IVA,total larynectomy and glossectomy 9/4/07 with pec flap...reoccurance Nov. '08 and Feb. '09 (positive margins remained after each operation) Second pec flap May 7, 2009. Still positive margins.
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