OP  "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | I sm a new tubie - 3 days home from hospital and trying to learn
I ended up with an infectinfection from my PICC line - was in hodpital om IV amtibioantibiotics for 5 days now 14 days of pill form antibiotic
before surger for petmanpermanent feedfeeding tube, I was taking Benefibre daily as I was on a lsoft food diet and wad not getting en finrfibre
ok. My questquestions
1. Does anyone add Benefibre to flushing water or “free water”
2. Does any have a morning coffee in peg bag - say 2 cups coffee plus lactose free milk and let it drip? My rstionrationale is that it is all liquid and eould be mice to wake up and have a coffee
3. Does anyone use a probiotic if so which one and why?
4. How do you deal with cravings - cooking smell etc.
5. Dors anyone add say, some vodka to a bolid syringe I am not hooked on alcohol - just looking at moving to my “new normal”
pleade feel free to send as many answers as possible I thank you for youtyour assistance and time
donna b Aka. Pandora
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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