Thank you Christine. I'll put that together tonight and play around with the salt levels.

Thank you so much for your comments too. I'm really pleased with my progress. I know I'll lose some bits as the rads continue (10/33 complete) but at least I know I should be able to achieve them again later on in a few weeks/months time.

I have a mouthwash and a mouth spray that will help me continue to eat (HURRAH!!!) It's benzydamine, so it works like MM. I spoke to my team. Apparently some hospitals in the UK do use MM, just not mine. They feel that the benzydamine works just as well. I've used it before I had surgery on regular basis, it comes in a spray too so I can carry it with me when I'm out, it was good stuff.

I told my team about OCF and they are now going to recommend it to future patients from now on. They loved my knowledge and understanding of everything that is happening, and also how I make suggestions and ask questions. They are impressed that it's run by OC patients who share experience and use science based fact and not Dr Google.
They liked the Manuka honey but also suggested propolis as it can be added to water and swished around my mouth. Plus propolis is a quarter of the price of Manuka honey in the UK, and it gives similar results.

My hearing test came back. Compared to the base test I had in July, I have a 25 decible loss from the high pitch area. It's not noticable to me. The tinnitus is disappearing too. As I'm on a clinical trial, I am unable to switch to carboplatin. If I do then I'm not on the trial anymore. So I've said I'm happy to continue with the next dose. My team have said that they are happy to give me one more dose and cancel the 3rd. So that's the plan.


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients