I am so grateful for this group. I have learned so much information I would not have even thought to ask before.

They have mentioned the PEG, but only if I were not able to keep my own nutrition in control. If something happens that I'm unable to eat or drink orally once radiation starts, they will go ahead and PEG me. They do want to give me the opportunity to try first though. I'm very aware of myself and will be sure to keep close track of my health.

I thank you all so much for the support and welcoming me to the clan. Not a place any of us want to be, but I'm glad there's somewhere for us to be together.

I am concerned about the possibility of losing my entire tongue, does anyone have experience with this? What does it mean? Can anything be done to repair or replace the tongue? I know it essentially kills it so obviously it would not regrow or ever work again. I just cannot wrap my head around this possibility.

Non-smoker, non-drinker
10.28.13 Biopsy R front tongue
10.30.13 Stage 2 SCC dx HPV Neg, age 27
11.7.13 Right ptl gloss and R neck diss. Nodes neg and neg margin
1.17.14 SO confirmed SCC recurrence
1.23.14 Right glossectomy crossing into midline some of L remv and hollowed out inside, neg margins
1.28.13 swallowing strained, liq diet, Back L tongue shows poss tumor
2.5.14 Clear CT
2.17.14 Clear PET
3.10.14 Start IMRT