Thank you all so much for your replies. I greatly appreciate the insight. I am beyond the point of being able to eat. I had my second surgery on January 23rd. I am unable to swallow my own saliva, so I am only able to drink water and Boost or Ensure. I had gained some weight prior to surgery, but I have lost it all and another pound already.

I had G2 Squamous Cell Carcinoma, HPV Negative. I am concerned about the place in the back left, since I have an aggressive cancer I am afraid it is also a cancerous tumor. This has been such an insane journey. I never imagined I would deal with any of this, but definitely not that it would be such a fiasco to get rid of the cancer.

I will be seeking a second opinion through Vanderbilt University Medical Center here in Nashville. I am currently being seen by a ENt/Surgical Oncologist, I have a Radiation Oncologist, I am being overseen by a Dentist as well who has already repaired some of my teeth. I am having my fluoride trays made on Tuesday. I see my Surgical Oncologist again on Wednesday. I really need to know if this other place is a tumor and what the treatment options are. He says surgery, of course, but I do not want more of my tongue removed if I do not have to.

I would like to have chemo and radiation if it will have the same end result. I have not asked about chemo until this last appt when we noticed the threat of a possible third tumor. He is discussing things with the Radiation Oncologist and by Wednesday we should have some additional testing done, I believe. In the meantime I will contact Vanderbilt and see if I can get an appointment there to discuss my case with another team of physicians.

My Radiation Oncologist is definitely going to keep up with my health through blood tests and will make sure my thyroid is okay. I am afraid that my body will not take well to radiation because I am sensitive to most things. I hope I do not need a feeding tube, I am going to keep fighting to drink my nutrition. I have definitely not been hitting enough calories this week, but I am only 5 days post right partial glossectomy.

If I missed anything, I apologize. I will go back through and read again. Please if you have any advice for any guidance, I will listen. I need insight as I am nervous and scared. I trust I am in good hands, but if my case rings any bells, I would love to hear your experience.

Thank you all for the warm welcome. I will be visiting quite a bit. I will be sure to post questions and anything else in the appropriate place. I need to learn how to do the signature and research the abbreviations. I am still trying to figure those out.

For instance, what is a CCC? I am very new to this.