Katy,

I am going to have to be the guy that says get the PEG. No if/ands/buts about it. If you are getting your whole tongue, including BoT radiated. I highly doubt you will be able to get the food to your stomach.

I am over one week post Tx and I can't even attempt to eat orally yet. There were points in my treatment where my tongue was swollen and had multiple open sores(due to the radiation scattering on dental work), any liquid beyond BMX was extremely painful to put in my mouth.

Now, swallows of water alone are painful but doable. I can still take oral meds after I BMX. But you can only use that 3x a day.

I hate my PEG and the smell of the formula more than anything, but I respect what they have done for me.

I still have lost 10% of my weight with the PEG. I'd have certainly been in the hospital without it.


Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear