Just checking in with you all again. I have been able to start eating solids! No weight loss at all, I have maintained my weight. I am doing very well, other than the place in the back left of my tongue. We did a CT with contrast yesterday and I go back next Wednesday and Thursday to the surg and radiation oncologist. We will discuss whether the place is another tumor, or trauma from surgery. He might end up doing a biopsy, which will be surgical as it is beneath the surface.

Prognosis is I would lose my tongue if surgery is necessary since I am already missing most of the right and he would be coming from the left. He would need to cross the arteries. We are discussing radiation only and the success from that, or possible chemo w/ radiation if they do not feel radiation alone would get rid of the tumor and any small cancer cells remaining.

I do not know what most of this really means. I am processing the info and trying to wrap my head around losing my tongue or my hair. So many different things going through my head.

ETA: It took me ten days before I could eat solid food, I am up to about one full meal per day of solids. Everything else is Boost, Ensure or pudding. I have been drinking a ton of water and Boost so have been able to maintain my nutrition until I was able to swallow better. It is definitely possible to strengthen your muscles enough to regain swallowing ability. It was difficult, but I worked hard to make it happen. It really isn't easy still, but if I want something other than Boost I have to push through and make it work.