| Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jun 2013 Posts: 262 | Hi there Katy, and welcome. You are doing a great job following through on your health. That vigilance will see you through. And you're right, it is a journey -- the lowest points are only temporary and will pass. Some things will change, but the sweetest things in life will still be there for you, and in some ways, on some days, sweeter than ever.
I'll add two suggestions to all the great advice already coming your way. First, ask a friend or neighbor to organize a meal chain for at least several nights a week starting your 3rd week of rads and lasting at least two weeks post-rads. It will take tremendous pressure off your husband and you'll know that he and the girls are eating healthily. Ask the organizer to invite friends, family, neighbors, daycare families, church family, and co-workers to sign up through a site such as TakeThemAMeal.com. It was a lifesaver for us, and people were so glad to have a way to help.
Second, I hit a few stretches where I couldn't talk. My 9-year-old daughter was beside herself. I had made a short recording for her before treatment, and wished I had made more. Consider recording yourself singing a favorite song, or reading a favorite book. They can sit on your lap and listen when your voice and energy ebb.
You have been through so much in such a short time, it would set anyone reeling. For me, the lull before treatment was the hardest part -- the unknowns were so frightening. The good news is that just 3 months from now you'll already be done with treatment, and almost certainly through the worst of any side effects.
Hugs,
Lynn
53 T3N2aM0 HPV+ 5/26/13 discovered painless superball-sized lymph node in neck 6/26/13 DX SCC R palatine tonsil 7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes 9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses 10/16/13 Treatment ends Dec 13 Ulcer appears at surgery site Jan 17 Biopsy -- no cancer! Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
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New to Oral Cancer, New here, Hi
| Katy G | 01-29-2014 03:31 AM |
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| Cheryld | 01-29-2014 04:03 AM |
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| n74tg | 01-29-2014 11:15 AM |
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| Cheryld | 01-29-2014 02:59 PM |
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| David2 | 01-29-2014 06:29 PM |
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| ChristineB | 01-29-2014 06:42 PM |
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| donfoo | 01-29-2014 07:17 PM |
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| Mamacita | 01-29-2014 10:23 PM |
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| Katy G | 01-30-2014 01:35 AM |
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| RebeccaH. | 02-01-2014 09:35 PM |
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| ChristineB | 01-30-2014 02:36 AM |
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| n74tg | 01-30-2014 02:46 AM |
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| lamanatimaja | 01-30-2014 03:59 AM |
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| Katy G | 01-31-2014 02:45 AM |
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| ChristineB | 01-31-2014 03:11 AM |
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| Katy G | 01-31-2014 03:34 AM |
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| RebeccaH. | 02-01-2014 09:38 PM |
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| n74tg | 01-31-2014 04:34 AM |
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| Katy G | 01-31-2014 04:47 AM |
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| n74tg | 01-31-2014 11:47 AM |
Re: New to Oral Cancer, New here, Hi
| BrianPK | 02-01-2014 09:24 PM |
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| Mamacita | 02-04-2014 01:28 AM |
Re: New to Oral Cancer, New here, Hi
| Katy G | 02-07-2014 01:54 AM |
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| n74tg | 02-07-2014 02:42 AM |
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| Katy G | 02-07-2014 03:47 AM |
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| Katy G | 02-07-2014 03:56 AM |
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| tamvonk | 02-07-2014 06:42 AM |
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| donfoo | 02-07-2014 05:03 PM |
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| Katy G | 02-07-2014 09:31 PM |
Re: New to Oral Cancer, New here, Hi
| Cheryld | 02-07-2014 09:53 PM |
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| tamvonk | 02-07-2014 10:17 PM |
Re: New to Oral Cancer, New here, Hi
| Cheryld | 02-11-2014 04:40 PM |
Re: New to Oral Cancer, New here, Hi
| Katy G | 02-17-2014 04:49 AM |
Re: New to Oral Cancer, New here, Hi
| n74tg | 02-17-2014 11:54 AM |
Re: New to Oral Cancer, New here, Hi
| Katy G | 02-24-2014 12:04 AM |
Re: New to Oral Cancer, New here, Hi
| Cheryld | 02-24-2014 04:01 AM |
Re: New to Oral Cancer, New here, Hi
| Katy G | 03-01-2014 07:25 PM |
Re: New to Oral Cancer, New here, Hi
| ChristineB | 03-02-2014 01:41 AM |
Re: New to Oral Cancer, New here, Hi
| braziliangirl82 | 03-06-2014 03:24 AM |
Re: New to Oral Cancer, New here, Hi
| Katy G | 03-11-2014 03:22 AM | |
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