HUMBLE? Don't get soft on my Eric! laugh

Maybe offline I would love to hear more details about the nerve graft and where it was done. My contention is that nerves traveling through neck get so much scar tissue in the myelin that it can no longer feed muscles. Then carbon or uric acid buildup blocks veins much like cholesterol plaque in arteries. The combination is what causes muscles to atrophy and as accessory muscles take over for larger muscles they just burn out from being overworked constantly. The neurologists believe the signal decline in muscles is caused by damage to the anterior horn or brain stem and is strictly a motor neuron deficit. I think it mimics that by presenting as motor function decline and the problem is farther downstream and related to nerve damage.

What's the timeframe for the nerve to connect? This is something I think is very significant for us and breast cancer survivors that get radiation to the neck. The only other possibility is IGF-1 R3. It has some interesting results. IGF-1 R1 is the deer angler spray. R1 has a half life in minutes so it immediately flushes out through urine. R3 is only allowed in labs because they believe that while it regenerates nerves and motor neurons, the pain as the nerves grow inch by inch may be inhumane. The mechanism involves triggering the liver to produce more natural HGH.

Thanks again for all the nutrition and muscle discussion. If I can build some muscle in my face and neck life would be grand. Actually life will not even be a possibility if I can't keep the atrophy in check. It is a full-time job for sure! I have a group of docs that believe I am the only patient they have seen that stopped cachexia as advanced as mine.

Also, research the reishi from an ALS/motor neuron/nerve perspective. Big caution, though, as reishi significantly thins blood and lowers blood pressure. I went 30 days without and saw major atrophy in areas that were building. Started back this week sparingly and see difference just this week. I have tried dried black and red. The red have less side effects for me but better results. I am going to make some tea and use it in shakes.

Ed

Last edited by Uptown; 05-15-2013 06:13 AM. Reason: Misspellings...iPad did it!
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023