 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Heather,
Believe me, we understand everything you, your husband and your child are experiencing right now. We will be here 24/7 to help you and your family through this bump in life's road. Don't hesitate to ask ANYTHING and I mean ANYTHING. Take a pad and pen with you to all future appts and take notes. Don't be afraid to ask the doc to repeat his comments.
Ask his primary dentist to make dental trays for daily fluoride treatments and begin those asap. Have his TSH blood levels checked pre radiation and record that number for potential use post Tx. As soon as he can encourage him to eat eat eat and eat some more every day as we all loose weight during rad.
Let us know what they say about chemo.
Stay as calm as possible and we'll get you through this.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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