Hi Christine, I will definitely tell my parents soon before this news spreads. I haven't told anyone yet apart from you guys on this site who have this experience but will inform my friends and relatives... I was diagnosed with it only yesterday and want to do a bit of research about it before telling my relatives.
I am a Lithuanian citizen but have lived in UK for many years and am a permanent resident here, so will probably look for treatment in this country. However, I can opt for another country if they can provide better treatment and the cost is ok. I think it is the key question now where to undertake this treatment. I would like to keep as much of my tongue as possible.
It seems there are modern techniques in Israel to treat tongue cancer. Has anyone heard or has any experience with focused ulstrasound, thermocoagulation, laser surgery, gamma knife? Or are these techniques conventional that can be expected to be used in any surgery? Also, it seems there are clinics that can replace the tongue after surgery. Has anyone had any experience of getting a new tongue/part of tongue? I can't even imagine though how much it will cost if it would be a private clinic...
Tina, where are you going to have your surgery? In Canada?
Cheryl, I hope so too... It all is so horrible...
Thanks
Max