I finally have my radiation simulation scheduled for this coming Tuesday (8/28/12). My port goes in the day prior. Things are starting to happen, which is good, but it's now becoming more concrete in my mind that this is really happening. It's funny how the mind works like that. STILL waiting for my HPV status on my tumour. I was supposed to get 2 returned calls this week, but nothing. I know it's a low priority on the phone triage list, but c'mon. I'm going to call my SO tomorrow because he has clinic hours. I'll get an answer then. PLEASE, IF THERE IS A GOD, LET IT BE POSITIVE!!!

Post and rant over and out!

Love you all!

Last edited by Kerri; 08-23-2012 09:21 PM.
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!