 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Kerri,
Sorry that you will have to undergo the chemo/rad but it is what it is and getting the port is a great idea. I wish that was standard procedure. I didn't get one and man it would have made a huge difference late in the Tx for me. I didn't get a PEG and I'm I glad about that but I did allow them to put in a nasal tube for a couple of weeks post TX and it made a big positive difference.
One question, in your Signature you have 08/06/11 for the new SCC. I assume you mean 2012?
Our advice most of the time when facing the rad sessions is to tell people to EAT EAT EAT but with your recovery that may be difficult.
Also get to see a dentist and get the trays made and start with the fluoride asap. Also have them test your TSH level on your next blood draw and save that result for later just in case your thyroid craps out like some of us.
Good luck all the way around and feel free to ask anything anytime.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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