"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hey again! Everyone has covered everything else so I'm going to add one thing... Don't let them tell you lung mets is palliative - that's crap, it depends on involvement (I sincerely hope and doubt that you would have them as they have caught it early and there are others here who've had a secondary primary pop up and they are NED after all of that) anyway there are clinical trials available and there was someone here around Christmas who had had lung meta... 2 locations - one was surgically removed - one responded to a clinical trial drug - and that person was expecting to get an NED after their follow up scan. It was a three year thing for them. So don't accept palliative.  take care.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
|