Dan and I went to the team meeting yesterday. It was a long day, but I know these doctors are great, as I have seen them a couple of times before with round 1.

The final details of the path report are not ready yet, but it is definitely SCC of the left tonsil. They seem to think that it is a second primary tumour. They said whether or not it's HPV+ is an academic question, because the status would not affect the treatment plan. My MO explained that some clinical trials are using lower doses of treatment when it comes to HPV+ tumours, but she doesn't recommend this as it has not yet been studied enough.

I have a PET/CT on Monday and I'm hoping for good news on that in that it hasn't spread to my lungs. I just don't see how something that has been watched so closely could have spread to my lungs. As I understand it, if that is the case, palliative care is all that can be done.

So, the treatment plan is to let my tonsillectomy surgery heal a bit more and begin treatment in a few weeks. In the meantime, I get my radiation mask made and do a simulation. I will also be getting a port, since my veins suck. They will continuously assess my need for a PEG. The team is recommending 35 rad treatments, with chemo once a week using carboplatin and taxol.

Any input from you guys would be much appreciated. I feel confident in the team. I just need a little bit of good luck. I need to see my kids grow up spend a lifetime with my husband, my best friend.


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!