Hi Josh,
I love your positive attitude. We handled it by taking each step one at a time too. It is doable. They seem pretty certain, so I would start eating whatever you want and as much of it as you want so you can gain some weight before tx. You will lose weight. Kevin lost 56 lbs, but he had it to lose so did ok. Now we struggle to keep his weight where it is though. Just another side effect of radiation/chemo I guess.
How old are you?
Please tell your wife that she can pm me if she would like to talk caregiver to caregiver. It will be very hard for her. Probably harder than it is on you because while you are going through it, she is trying to rock the house and babe and watch and help you too. It is gut wrenching to see your loved one hurt.
Please keep in touch with us. We'll be here for you.
Blessings,
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14