John,

I hear what your saying. I'm only a month ahead of you in this nightmere. I have had the same issues with mucus and not being able to talk. I used Siri on my phone to talk to my family and Dr.'s. Everybody says it will stop but I also wondered what if it doesn't? Well two weeks ago the mucus stopped. I can now talk! Now I'm dealing with dry mouth. I'm still using the PEG but have cut down on the amount I put in there. I am now eating some food but it is a real challenge trying to find something that tastes ok. I have even been doing some yard work. I get tired very easilly but my energy is getting better also. If I look back I can see how much I have improved. Hang in there.


Age 49 @ Dx
12/1/11 noticed lump in neck
1/6/12 excision 2 nodes Dx SCC
1/11/12 PET Dx SCC BOT
1/17/12 Biopsy BOT HPV+16
1/30/12 PEG installed
2/13/12 start Cisplatin X3 RAD X35
4/2/12 end RAD & chemo
7/2/12 PET Clear
10/9/12 PEG out
1/02/13 CT scan clear
7/08/13 CT scan clear