You know, when my radiation and chemo was over I was very tired but was happy that it was over. Then I had my neck disection and it just slammed me on my back harder than anything ever has. I have come a long way since then but things still arent the way I was hoping they would be. I did go back to work and Im not so sure that was a good idea but I had no choice but to do so or lose everything. Then I went in to have my trach tube taken out and they found scar tissue caused by the trach tube that had to be removed. I was like, ok, I will have this done and wake up without the tube. Wrong !!!!! There was swelling and they thought it best that the tube stay in until the swelling went down which I agree with.My neck is as tight as a drum and some days it is so hard to even lean my head back. My swallowing does seem to be getting much better.

The point Im trying to make is that everything just keeps going wrong. I am so down in the dumps that I cant stand it. Some days I ask myself if it is still worth going forward.

I have an appointment with a psychiatrist and counselor this Wednesday and I am hoping that something will start to change for the better after seeing them.

The main question I have here is like the thread title says...DOES IT EVER END????

Billy


Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07