When you go to the ENT, you can ask him about getting a second opinion. I didn't go to a CCC, I was all new to this and everything happened so fast. I was more than ok with the care I received, but if you can get a second opinion I would definitely take their advice and go to a CCC if you can.

I'll be sure to keep you in my thoughts and prayers. It is a very scary process and it just plain sucks.