Well , these are hardly kids just as mine were. I told mine right away and by the time my surgery date arrived they were prepared for it as I was. If it bothered them, they didn't say anything but were great .

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here