 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Wendy, What surgery was your Oral Surgeon saying he thought you would have? I had BOT and 2 nodes and had ZERO as in NO surgery. I also consulted 5 different cancer docs before I let anyone do anything to me. BTW my fifth doctor was a CCC, Moffitt in Tampa and if I were you after hearing what the ENT says I would run to the nearest one for another opinion. For a list of CCC's http://www.oralcancerfoundation.org/resources/cancer_centers.htmAlso just my personal opinion, I think I would wait until you know more before I would tell your kids anything other than "I am having some medical tests done"
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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