Wendy:
I discovered this site 9 months ago when I was diagnosed with BOT. The people on this site are extremely knowledgable. I would definitely take their advice on consulting a CCC (Comprehensive Cancer Center). These docotors diagnose and treat many more OC patients than an ENT who may only treat a few patients a year. Also they may more current on the latest medical info and treatments.

I also would not hesitate to get 2,3 or even 4 opinions until your comfortable with your treatment decisions.

I would also take another step and do research on the web regarding different chemo drugs/radiation/different types of treatment. Gain knowledge so you can be your own advocate. For me this was invaluable as I felt involved in the process. This reduced my fear and gave me peace of mind that I made the right decisions.

I also did not have surgery. Originally, doctor's wanted to treat me with chemo/radiation, but I opted for a more aggressive treatment. I decided to do Induction Chemo Therapy (combo of 3 drugs) and then radiation. I sailed through both treatment although most patients have more side effects from these treatments. Now, I've just had my 3 month PET/CT scan to see if there is any of the cancer left, and then possibly do surgery to remove it. (Hope not!)

When I was first diagnosed I was scared. My imagination took me to the worst places. But then, I decided that this cancer was not going to control me. I took control where I could: The Present. I did research, talked to several doctors, and worked hard during my treatment and recovery to regain my health.

If you have any questions or just need a cancer support buddy, don't hesitate to email me.

Sandyst