I understand how you feel. A week ago I finished 7 weeks of radiation/chemo treatment for a stage 2 tumor on the base of my tongue. I have been very frustrated by how long it's taking to recover. My doctor has reassured me that I'm doing fine and have actually improved quite a lot. I know this is true, my neck burns are gone, I have more energy, etc. But I am much more conscious of still suffering from the basics: throat pain, difficulty swallowing, thick saliva, inability to eat (I have a peg tube), sleeping problems and the like.

However, reading the replies above has already given me a sense of relief. I know in my head that patience is the answer, but hearing others' similar experiences has calmed me down. As David CPA said, I have experienced 3 bad days for every good day.

This is the first I've heard about making sure to open my mouth wide regularly. What does this do?

David


Stage 2 SCC right base of tongue. 7 weeks radiation & chemo with erbitux. Peg tube. Concluded radiation treatments 5.7.09. Two recurrences, two surgeries. Most recent, a substantial glossectomy, 3/25/11. PEG tube. Minimal swallowing ability, but working on it.