 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | As you have heard the next few weeks or so may be the worst yet but he will walk out of that tunnel one day soon and a very slow recovery period will begin. He will start out with one good day and say 3 bad ones and slowly the good days will outnumber the bad ones until the good ones win out.
Many of us did feel abandoned post Tx since we were so use to being treated every day and then BAM, nothing so it is a let down that you really aren't well prepared for especially when he gets a sore throat or a cold or anything that might send you both off the wondering cliff.
I have said many times over that the mental part of this disease is at least 50% of the battle and we are seldom treated for that part. Some end up taking antidepressants to deal with the post Tx period. Just like everything else, we can all react differently.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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