OP  Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Hi everyone. I wasn't sure whether or not to post this but I figure "someone" might understand what I am feeling. Tomorrow is John's last radiation and chemo treatment. Our lives have been consumed with all of this since the beginning of January. Now I am feeling "what now?" What happens next? Our daily life has been consumed with so many doctors appointments,me worrying constantly about John losing weight, not getting enough nutrition, low blood counts etc. I never knew until I was the "caregiver" how all consuming this is. Before this, John was never sick a day in his life. John has his own business and has always been a work-aholic working 18 hour days. He hasn't even been to his shop in 3 weeks. I'm not really sure why I'm typing this, I just feel very unsure and asking myself - what next? Wanda
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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