I think you are right, I will need to have the conversations but think I will put it off until after next weeks scans then start looking for the best time. It still just seems so unbelievable. Last November while she was suffering going through chemo and radiation, I would not have been as shocked with a poor prognosis but when she seems to be doing well, putting on weight, being more active, it just seems wrong.

Paula, good luck on the scan results on Monday. I know I am never sure if I would prefer results on a Friday or a Monday.

Sue, I believe it sounded like Neil was doing very well and working throughout most of the treatments. Had he considered stepping back or checked into disability at all?

Our oldest son has been living on his own, our second is away at college, so just have one at home for another couple of weeks. I have heard from their cousins that the two living away from our home, it is out of sight, out of mind. I know from Pam's first operation and treatment, I wish I had pushed my oldest son to be more involved. From discussions with him regarding recent exams, he seems much more concerned now than last summer. Is there anything that you can think of that you wish you could have handled or done differently for you children?

Mark, could I ask where you were treated?

Thank you all for sharing your insights.


Tom-CG to wife, Pam 46@dx
Stage IV Tongue Cancer T2N2C
Dx 6/08, Surgery 7/08, 3 nodes positive
9/08 33IMRT/7Carbo/Taxol
4/09 node biopsy positive, mets to lungs/stomach
5/09 Cisplatin or Cis/Alimta study
6/09 Cis/Taxotere
9/09 Taxotere
1/10 Xeloda
3/10 Cetuximab weekly
6/29/10 lost battle