Nice job!
As far as relating this to OC patients, several things could be added.
Its not for lack of desire to eat its from the result of surgery/radiation/chemo that ruins an OC patients ability to normally consume foods. Its due to lack of taste, sensitized tongue and mouth, dry mouth, mucous, trismus, pain, loose or missing teeth, fatigue, modified tongue, surgery in the throat or mouth areas, open sores or blisters, and inability to swallow or chew properly. These are all things that oral cancer patients endure while going thru treatment and healing. All the while trying to eat and swallow which is nearly impossible much of the time which to me is complete involuntary anorexia. This should be brought out more. Its something only oral cancer patients and their immediate caregivers understand.
Eating is a huge thing for oral cancer patients. I have not eaten a real meal in almost 2 years due to ongoing lingering after effects which are beyond my control. How I would love to sit down to a regular meal of anything, doesnt matter if its tacos, steak, pizza, or just a salad.
I would bet that if the figure of 54% of chemo patients lost weight, for oral cancer patients it would be 95%. Unfortunately oral cancer cant be treated successuflly with chemo alone.
I did also notice the feeding pump part. It made it seem like it was an option for anyone when its only for those who have the PEG tube. Even with the PEG tube I still lost 65 pounds.
A couple suggestions for avoiding anorexia seemed incorrect, like adding seasonings. For most of us, seasonings would be out of the question for quite a while due to the oral problems I mentioned above. Any spices would burn our delicate mouths. For relearning to eat texture plays a huge part. Foods that are 'smooth' work best for beginner eaters.
Overall, I found your report very interesting. Many small details were included. It must have taken you a great deal of time and work to compile all this info and put it logically together. Im looking forward to your next topic.
Thank you!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive