Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Overall, I lost 65 pounds from having OC. Without the help of a feeding machine and the PEG tube, it would have been much worse. At 20 months post OC diagnosis, I can happily say my weight is stable. I havent gained back what I lost, but I am able to maintain a normal weight. It does still take alot of work and planning to consume a balanced diet on a regular basis.
Patty, I used the feeding machine overnight for about 6 months. Its something that would be very helpful to you. I have several tricks that I can share with you if you need any assistance with it.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |