I wish I could be of more help, but the only time I really had any desires to not eat was when I was switching from the feeding tube back to oral eating. That was because I was on a continuous feed with the feeding tube and when I would try to take in the drinks by mouth, I would get super full super fast and feel awful after. It was pretty frustrating. But once I got over those issues I was all about food and am constantly eating (and still losing weight I might add).
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
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