Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | As I remarked elsewhere, I am starting to have some food cravings and I am nowhere near being able to swallow anything. I just hope that when I am able to start eating again, that I will have enough functional taste buds to have food taste good.
I don't think there's much of a problem with PEG dependency because that's just a willpower problem; the real PEG problem, for those who may have a choice, like during radiation, is not knowing about or dealing with things like trismus and swallowing. I would recommend to anyone that they get the PEG, maintain it by flushing with water, and just taping it out of the way as a backup -- Having it doesn't mean one has to use it, but not having it means one has fewer choices.
Even now, I have to constantly remember to do some jaw stretching to keep trismus at bay.
Eating with damaged food-processing equipment is hard work and it may be quite difficult to ingest a sufficient number of calories daily to keep one's weight up and support the healing process. During and post radiation, I kept the swallowing exercised by taking my meds by mouth and also my hydration -- I used the PEG almost primarily for food.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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