Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Brian you are a wise man. One of my biggest difficulties is dealing with how different my life will be from now on, but I try to focus on being grateful for the opportunity to have such a different life. You are correct about having to face mortality - it is not something that a lot of us have thought about.
Rett I had 80% of my tongue removed in Sept 08 and I am able to swallow - how well depends on the thickness of what I am trying to swallow. My therapist told me that if I don't keep trying to swallow I will lose the ability to swallow and that it will get better the more I try. I don't know the truthfulness of this, but I am able to swallow thicker substances the more I try. Maybe that will help spark some interest with your dad.
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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