"OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | I know that following my first extensive surgery and treatments I found it really difficult to drink any water not only from a cup but also through a straw. Having so much of my tongue removed that plays such a major part of movings things around my mouth I know how frustrating it is and how deflated it made me feel. I tried to sip and drink all sorts of different things and I found that I can drink a milk shake easier than I can drink water.
I mentioned this to my speech therapist who told me that that would be because water is a 'loose fluid' and because things like milkshakes are thicker I have more control over them in my mouth. On reflection that made so much sense - water just goes all around my mouth, I can't taste it or hardly feel it therefore I have hardly any control over it where as things like shakes I can feel and can control so much more.
It can be a very long slow process, even now I still have the same result with water as I did all those months ago.
Hope this helps a little
Karen
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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