Becky:

Its very unsettling to be advised to do anything drastic like removing teeth. It is something that can be a necessity at times for this awful disease.

I only had 2 teeth pulled before tx, the rest were considered good enough to make it thru rad. I now suffer from very limited mouth opening and need alot of dental work done. At this point, cant do anything til my mouth can open wider than the size of a straw. Ive searched from doctor/specialist to doctor/specialist in all fields for help. There is nothing that can be done for me except continued physical therapy and HBO. Im not much older than you so I do understand how terrible this can be.

A second opinion is a good idea, but please consider what I have written. If your teeth are considered questionable, then think about this carefully. I suffer every day and can barely eat. If I could have seen the future, I would have told them take all my teeth while they could get in there.

Best of luck to you.