Hi Becky,

Yeah this disease and its treatments are brutal and we all hate it, it turns our worlds upside down, it is horrid.

It took me nearly 4 days after I was diagnosed to go and tell my parents, knowing how upset and fearful for my wellbeing and future they would be. I still cry when I think of that day.

When the first surgeon said to me that I would have to have nearly all of my bottom teeth removed I nearly screamed, actually I probably did. My visits to the dentist were 6 monthly since I can remember and my teeth were healthy and perfect, everyone used to comment on them. But unfortunately they had to go so my jaw could be fixed, otherwise the bottom of my face would have dropped because my jaw was collapsing from the bone damage and that would have been a catasrophe, worse than not having teeth temporarily, that is for sure.

But, very soon I will be in the process of getting 'fitted out' for new bottom teeth implants.

It certainly is not easy to deal with, but if you have to you can because it is only going to be for a short time NOT permanent.

Thinking of you from across the globe

Karen