 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sandy,
Brian gave you the full version to my Reader's Digest condensed version. Consider me the "good and honest person to say it to your face in hopes you will finally get it" to paraphrase Brian's statement. As many who know me will attest to, I will bend over backwards (with a little neck pain now) to help anyone in any way I can and provide unbelievable support to anyone that asks for it. Sometimes I am brutally honest but as Brian says, this is nothing to mess with.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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