SandyJo,

When you wake up tomorrow morning, spend the first few minutes thinking about what you do have. Listen for the birds, notice the sun shining, notice the absence of gunshots...These are examples of things we take for granted that others accept as life.

Email some people on this forum and hear of how they saw their loved ones battle this disease to the last breath. Or, maybe chat with a few people on this forum that know for certain, that there is no more cure available to them, that there are literally days left to spend with their families.

Spend the last days with a terminal parent discussing life and death as you see them whither away until their physical body gives out.

You sound like you are so unhappy with the way things are yet you do not seem to want to do anything about it. If you are not willing to do whatever it takes to enjoy life and live life to the fullest, what do you expect from others?

I hope tomorrow you wake up and say, "gee, what a great day". You have been blessed with two great years yet you have wasted most if not all of those days, based on your post. Carpe Diem, sieze the day, for it is yours to do with as you choose.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023