Sara,

If you would like to bounce thoughts off someone that has been through what you are going through (and getting ready to go through) feel free to email my wife, Susan ([email protected]). She will tell you plenty of tense moments that I even laugh at now (even if I don't think they are funny and still take them personally!). I don't remember some so I just bob my head and go along with it, not believing I could have even possibly been like that! eek God bless you and fasten your seatbelt...it will get a bit tougher before it gets better.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023