 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Nicki!
In many ways you were much more "prepared" for this than most of us as you have been nosing around here, asking questions and getting ready for the wild ride. I am sure, though, that just like most of us, you were shocked to see someone you love suffer from the treatment like Tom has. You are so special to be in the role you are and I pray every day for God to guide you through this and shower you with His love.
I remember when my mother was very ill and went down to 40 or 50 lbs. When I looked at some picutres of her after she passed away I made a comment to my sister that our mother really looked bad in the pictures and she told me the picture made her look much better than she really did in life. I hardly noticed it as we went through each day. I always thought that was the gift God gave to me so I could make it through the horrible things we went through that year.
Through that experience and a few others I have found that God drops little signs of His beauty and love to remind us that no matter how bad things are, He is close by to bring a smile to our faces when we most need it. I am praying that He touches you in a very special way each and every day!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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