 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Nickie,
Sorry to hear of the rough times. Even a year later it seems every few weeks I learn of another little problem in the ol' body. I figure if I could trade in this 80 year old body for a 48 year old...I could live another 40-50 years.
The hospital I was in (and out of) here in Dallas (Zale Lipshey) has rooms with a bench that converts to a bed for my wonderful wife to sleep in when I was hospitalized. It was such a nice touch and so comforting to just look over in the middle of the night and see her there. For a little extra fee they even had suites so several people could stay.
I hope Tom gets home as soon as possible. Hang in there and tell Tom we are thinking of him and cheering him on in this wild roller coaster ride.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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