Mark, you really speak my mind. I don't quite understand why patients who have PEG or their caregivers feel so defensive and sometimes offensive when they come across posts from others who have experience without a feeding tube.Like you, I never told people not to use one if they have the need to and I don't think I have done anything wrong by sharing my experience without a tube. I dare to speak up here because I don't want this subject to be of a one-sided opinion. I always think that my role here is to share what I have gone through and as a 5-year survivor from a stage 4B cancer, I think my participation can give some, if any, encouragement to members here.I have never questioned myself whether I am qualified to give response to a certain thread but I have learnt to speak much more cautiously in order not to create uneasy feelings from others.
Karen